JAMDA
Volume 7, Issue 4 , Pages 219-223 , May 2006

Symptom Experiences of Residents Dying in Assisted Living

  • Juliana C. Cartwright, RN, PhD

      Affiliations

    • Oregon Health and Science University, School of Nursing, Ashland, OR
    • Corresponding Author InformationAddress correspondence to Juliana C. Cartwright, RN, PhD, Oregon Health and Sciences University School of Nursing, 1250 Siskiyou Boulrvstd, Ashland, OR 97530
    • ,
  • Susan Hickman, PhD

      Affiliations

    • Oregon Health and Science University, School of Nursing, Ashland, OR
    • ,
  • Nancy Perrin, PhD

      Affiliations

    • Oregon Health and Science University, School of Nursing, Ashland, OR
    • ,
  • Virginia Tilden, RN, DNSc

      Affiliations

    • University of Nebraska Medical Center College of Nursing, Omaha, NE

References 

  1. Mezey M , Dubler N , Mitty E , Brody A . What impact do setting and transitions have on the quality of life at the end of life and the quality of the dying process? . Gerontologist . 2002;54–67
  2. National Center for Assisted Living . 1998 Facts and trends (The assisted living sourcebook 1998) . 2005; Available at: www.ncal.org/about/resident.htm. Accessed August 16
  3. Spillman B , Liu K , McGilliard C . Trends in Residential Long-Term Care (Use of Nursing Homes and Assisted Living and Characteristics of Facilities and Residents) . 2005; November 25, 2002. Available at: http://aspe.hhs.gov/daltcp/reports/rltct.htm. Accessed August 16
  4. Cartwright J , Kayser-Jones J . End-of-life care assisted living facilities . Journal of Hospice and Palliative Nursing . 2003;5:143–151
  5. Sloane P , Zimmerman S , Hanson L , Mitchell M , Reidel-Leo C . End-of-life care in assisted living and related residential care settings (Comparison with nursing homes) . J Am Geriatr Soc . 2003;51:1587–1594
  6. Singer PA , Martin DK , Kelner M . Quality end-of-life care (Patients’ perspectives) . JAMA . 1999;281:163–168
  7. Hanson LC , Danis M , Garrett J . What is wrong with end-of-life care? Opinions of bereaved family members . J Am Geriatr Soc . 1999;45:1339–1344
  8. Teno J , Clarridge B , Casey V , et al.   Family perspectives on end-of-life care at the last place of care . JAMA . 2004;291:88–93
  9. Steinhauser K . In search of a good death (Observations of patients, families, and providers) . Ann Intern Med . 2000;132:451–459
  10. Kutner J , Steiner J , Corbett K , Jahnigen D , Barton P . Information needs in terminal illness . Soc Sci Med . 1999;48:1341–1352
  11. Lynn J , Teno JM , Phillips RS , et al.   Perceptions by family members of the dying experience of older and seriously ill patients . Ann Intern Med . 1997;126:97–196
  12. In:  Field MJ ,  Cassel CK editor. Approaching Death (Improving Care at the End of Life) . Washington, DC: National Academy Press; 1997;
  13. Foley DJ , Miles TP , Brock DB , Phillips C . Recounts of elderly deaths (Endorsements for the patient self-determination act) . Gerontologist . 1995;35:119–121
  14. Emanuel EJ , Fairclough D , Slutsman J , Emanuel LL . Understanding economic and other burdens of terminal illness (The experience of patients and their caregivers) . Ann Intern Med . 2000;132:451–459
  15. Dixon S , Fortner J , Travis SS . Barriers, challenges, and opportunities related to the provision of hospice care in assisted-living communities . Am J Hospice Palliative Care . 2002;19:187–192
  16. Hickman SE , Tilden VP , Tolle SW . Family reports of dying patients’ distress (The adaptation of a research tool to assess global symptom distress in the last week of life) . J Pain Symptom Manage . 2001;22:565–574
  17. Tilden VP , Tolle SW , Drach LL , Perrin NA . Out of hospital death (Advance care planning, decedent symptoms, and caregiver burden) . J Am Geriatr Soc . 2004;52:532–539
  18. Zimmerman S , Sloane P , Eckert JK . Assisted Living Needs, Practices, and Policies in Residential Care for the Elderly . Baltimore: Johns Hopkins University Press; 2001;
  19. Wilson KB . Assisted living (Evolving model for a new generation of elderly) . 2005; Testimony presented June 11, 2003 to the Federal Trade Commission & Justice Department Hearings on Health Care and Competition Law and Policy. Available at: http://www.ftc.gov/ogc/healthcarehearings/docs/030611wilson.pdf. Accessed June 15
  20. Tolle SW , Tilden VP , Rosenfeld AG , Hickman SE . Family reports of barriers to optimal care of the dying . Nurs Res . 2000;49:1–26
  21. Zimmerman S , Sloane P , Hanson L , Mitchell M , Shy A . Staff perceptions of end-of-life care in long-term care . J Am Med Dir Assoc . 2003;4:23–26
  22. Mitty E . End of life planning and care in assisted living facilities . 2000; Paper presented at: the 53rd Annual Scientific Meeting of the Gerontological Society of America; November 17–21; Washington DC

 This study was supported by the National Center for Nursing Research, Grant # 1P20NR07807-01, Center for Symptom Management, Oregon Health and Sciences University, School of Nursing, L. Nail, Principal Investigator.

PII: S1525-8610(05)00548-7

doi: 10.1016/j.jamda.2005.09.011

JAMDA
Volume 7, Issue 4 , Pages 219-223 , May 2006

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