JAMDA
Volume 11, Issue 1 , Pages 21-25 , January 2010

Home Care in the Last Year of Life: Family Member Perceptions of Unmet Need Associated With Last Place of Care

  • Aman Nanda, MD

      Affiliations

    • Division of Geriatrics, Rhode Island Hospital, Brown Medical School, Providence, RI
    • Corresponding Author InformationAddress correspondence to Aman Nanda, MD, Division of Geriatrics, Rhode Island Hospital, APC-424, 593 Eddy Street, Providence, RI 02903.
    • ,
  • Meg Bourbonniere, PhD, RN

      Affiliations

    • Office of Professional Nursing, Dartmouth-Hitchcock Medical Center, Lebanon, NH
    • ,
  • Terri Wetle, PhD

      Affiliations

    • Center for Gerontology and Health Care Research, Brown University, Providence, RI
    • Department of Community Health, Alpert Medical School, Brown University, Providence, RI
    • ,
  • Joan Teno, MD, MS

      Affiliations

    • Center for Gerontology and Health Care Research, Brown University, Providence, RI
    • Department of Community Health, Alpert Medical School, Brown University, Providence, RI

References 

  1. Scanlon WJ. Medicare Post-Acute care. Home Health and Skilled Nursing Facility Cost Growth and Proposals for Prospective Payment. Testimony before the Subcommittee on Health, Committee on Way and Means, House of Representatives. March 5, 1997. Available at: http://www.gao.gov/archive/1997/he97092t.pdf. Accessed September 3, 2009.
  2. Medicare Beneficiary Access to Home Health Agencies. Washington, DC: US Dept. of Health and Human Services, Office of Inspector General; October 1999;Document OEI-02–99–00530
  3. McCall N, Korb J, Petersons A, Moore S. Constraining Medicare home health reimbursement: What are the outcomes?. Health Care Financ Rev. 2002;24:57–76
  4. McCall N, Korb J, Petersons A, Moore S. Reforming Medicare payment: Early effects of the 1997 Balanced Budget Act on postacute care. Milbank Q. 2003;81:277–303
  5. Ratner E, Norlander L, McSteen K. Death at home following a targeted advance care planning process at home: The kitchen table discussion. J Am Geriatr Soc. 2001;49:778–781
  6. Fried TR, VanDoorn C, O'Leary JR, et al. Older persons' preference for the site of terminal care. Ann Intern Med. 1999;131:109–112
  7. The SUPPORT Investigators. A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA. 1995;274:1591–1598
  8. Teno JM, Clarridge BR, Casey V, et al. Family perspectives on end of life care at the last place of care. JAMA. 2004;291:88–93
  9. Moinpour CM, Polissar L. Factors affecting place of death of hospice and non-hospice cancer patients. Am J Public Health. 1989;79:1549–1551
  10. Costantini M, Camoitano E, Madeddu L, et al. Palliative home care and place of death among cancer patients: A population based study. Palliat Med. 1993;7:323–331
  11. Sambamoorthi U, Walkup J, McSpiritt E, et al. Racial differences in end-of-life care for patients with AIDS. AIDS Public Policy J. 2000;15:136–148
  12. Fukui S, Kawagoe H, Masako S, et al. Determinants of the place of death among terminally ill cancer patients under home hospice care in Japan. Palliat Med. 2003;17:445–453
  13. Pritchard RS, Fisher ES, Teno JM, et al. Influence of patient preferences and local health system characteristics on the place of death. SUPPORT Investigators. Study to understand prognosis and preferences for risks and outcomes of treatment. J Am Geriatr Soc. 1998;46:1242–1250
  14. Grande GE, Todd CJ, Barclay SIG, et al. Does hospital at home for palliative care facilitate death at home? Randomized controlled trial. BMJ. 1999;319:1472–1475
  15. Spector WD, Cohen JW, Pesis-Katz I. Home care before and after the balanced budget act of 1997: Shifts in financing and services. Gerontologist. 2004;44:39–47
  16. Mrkofsky RL, Phillips RS, McCarthy EP, et al. Length of stay in home care before and after the 1997 balanced budget act. JAMA. 2003;289:2841–2848
  17. Stessman J, Ginsberg G, Hammerman-Rozenberg R, et al. Decreased hospital utilization by older adults attributable to home hospitalization program. J Am Geriatr Soc. 1996;44:591–598
  18. Hughes SJ, Cummings J, Weaver F, et al. A randomized trial of the cost-effectiveness of VA hospital-based home care for the terminally ill. Health Serv Res. 1992;26(6):801–817
  19. Lunney JR, Foley KM, Smith TJ, et al. Institute of Medicine. Describing Death in America: What We Need to Know. Washington DC: National Academy Press; 2003;p. 3–4
  20. Lunney JA. A call for a Revitalized National Mortality Followback Survey. Lasts Acts Partnership. Advocating Quality End-of-Life care. Washington DC. Available at: http://www.whcoa.gov/about/des_events_reports/PER_DC_07_19_05.pdf. Accessed September 3, 2009.

 The authors have no conflicts of interest regarding this article.

 Funding for this research was provided by the Robert Wood Johnson Foundation (Grant #037188). The opinions and findings in this manuscript are those of the authors and do not necessarily represent the views of Robert Wood Johnson Foundation. The Robert Wood Johnson Foundation did not have any role in the design, conduct or interpretation of the research or in the review, approval, or control of the manuscript.

PII: S1525-8610(09)00258-8

doi: 10.1016/j.jamda.2009.07.011

JAMDA
Volume 11, Issue 1 , Pages 21-25 , January 2010

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