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Editorial| Volume 16, ISSUE 12, P1008-1009, December 01, 2015

Palliative Care in People With Young-Onset Dementia (YOD): An Undiscovered Area!

  • Raymond T.C.M. Koopmans
    Correspondence
    Address correspondence to Raymond T.C.M. Koopmans, MD, PhD, Department of Primary and Community Care, Center for Family Medicine, Geriatric Care and Public Health, Radboud University Medical Center, PO Box 9101, code 117 ELG, 6500 HB Nijmegen, The Netherlands.
    Affiliations
    Department of Primary and Community Care, Center for Family Medicine, Geriatric Care and Public Health, Radboud University Medical Center, Nijmegen, The Netherlands

    Radboud Alzheimer Center, Nijmegen, The Netherlands

    Joachim en Anna, Center for Specialized Geriatric Care, Nijmegen, The Netherlands
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  • Jenny T. van der Steen
    Affiliations
    Department of General Practice and Elderly Care Medicine, VU University Medical Center, EMGO Institute for Health and Care Research, Amsterdam, The Netherlands
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  • Christian Bakker
    Affiliations
    Department of Primary and Community Care, Center for Family Medicine, Geriatric Care and Public Health, Radboud University Medical Center, Nijmegen, The Netherlands

    Florence Mariahoeve Center for Specialized Care in Young-onset Dementia, Den Haag, The Netherlands
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Published:August 18, 2015DOI:https://doi.org/10.1016/j.jamda.2015.07.001
      Young-onset dementia (YOD) is defined as dementia with first symptoms before the age of 65. Harvey and colleagues
      • Harvey R.J.
      • Skelton-Robinson M.
      • Rossor M.N.
      The prevalence and causes of dementia in people under the age of 65 years.
      found a prevalence of YOD in those aged 30 to 64 of 54.0 per 100,000, and 98.1 to 118.00 per 100,000 for ages 45 to 64. Compared with people with late-onset dementia (LOD), people with YOD have lower prevalence rates of Alzheimer disease (AD) and higher rates of frontotemporal dementia.
      • Rossor M.N.
      • Fox N.C.
      • Mummery C.J.
      • et al.
      The diagnosis of young-onset dementia.
      However, there are geographical differences regarding the prevalence rates of the different types of dementia. Ikejima et al
      • Ikejima C.
      • Yasuno F.
      • Mizukami K.
      • et al.
      Prevalence and causes of early-onset dementia in Japan: A population-based study.
      found that vascular disease was the most frequent cause of YOD in Japan, whereas Withall
      • Withall A.
      The challenges of service provision in younger-onset dementia.
      found alcohol-related dementia being the most frequent cause of YOD in eastern Sydney. Withall
      • Withall A.
      The challenges of service provision in younger-onset dementia.
      published in 2013 an editorial in this journal in which she addressed the specific challenges for services provision and long-term care for these relatively young people and their families. In this editorial, we focus on palliative care in people with YOD.
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