A major goal of the Patient-Centered Outcomes Research Institute (PCORI) is to bring
patients, caregivers, and other stakeholders into the research process and build a
community that enhances patient-centered outcomes research (PCOR).
1
There are about 2 million older adults in the United States who are homebound; another
5.3 million are unable to leave their homes without help.
Patient-Centered Outcomes Research Institute (PCORI)
Our vision and mission.
Our vision and mission.
https://www.pcori.org/about-us/our-vision-mission
Date accessed: February 1, 2020
2
Disproportionately burdened by multimorbidity, functional impairment, and low social
capital, these individuals are not engaged in PCOR. We recently completed a PCORI-sponsored
project to engage homebound older adults and their caregivers as Stakeholder Advisors
to create a patient-centered research agenda for the field. On completion of the project,
we explored the potential benefits or harms from participating as a PCOR Stakeholder
Advisor.To read this article in full you will need to make a payment
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References
- Our vision and mission.(Available at:)https://www.pcori.org/about-us/our-vision-missionDate accessed: February 1, 2020
- Epidemiology of the homebound population in the United States.JAMA Intern Med. 2015; 175: 1180-1186
- Therapeutic effects of qualitative research: Reconstructing the experience of treatment as a by-product of qualitative evaluation.Soc Serv Rev. 2003; 77: 455-467
- Member checking: Can benefits be gained similar to group therapy?.Qual Rep. 2012; 17: 510-517
- Effectively Including People with Disabilities in Policy and Advisory Groups.2nd ed. Harris Family Center for Disability and Health Policy, Pomona, CA2012
- Inclusion across the lifespan: NIH policy for clinical research.JAMA. 2018; 320: 1535-1536
- Co-existence of social isolation and homebound status increase the risk of all-cause mortality.Int Psychogeriatr. 2019; 31: 703-711
- Barriers to social participation among lonely older adults: The influence of social fears and identity.PLoS One. 2015; 10: e0116664
Article info
Publication history
Published online: May 03, 2020
Footnotes
This work was supported by a Eugene Washington Engagement Award (7258-JHU) from the Patient-Centered Outcomes Research Institute (PCORI).
The authors declare no conflicts of interest.
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© 2020 AMDA - The Society for Post-Acute and Long-Term Care Medicine.
