Abstract
Keywords
Social Functioning in the Nursing Home Setting
State COVID-19 data and policy actions.
Measures of Social Functioning
Tool (Citation) and Source | Type | Validated in Nursing Home Setting | Description of Tool | Example Questions | Suggestions for How to Use the Tool in Practice |
---|---|---|---|---|---|
Care planning measures | |||||
Preference Assessment Tool (PAT; Housen et al 2009 17 )Available for free at cms.gov; preferencebasedliving.com | Self, staff, or proxy report | Yes (Housen et al 2009 17 ) | 16-item measure of residents’ daily routines and activity preferences | “How important is it…
| Typically administered by recreational therapy, social services, or nursing; can be administered by staff with assessment experience. Interdisciplinary care team should work together to implement resident preferences into care planning and delivery. Especially during COVID-19, consider the use of technology and how to meet preferences within social distancing guidelines. |
Preference for Everyday Living Inventory (nursing home version; PELI-NH; Curyto et al 2016 18 )Available for free at preferencebasedliving.com | Self or proxy report | Yes (Curyto et al 2016 18 ; Abbott et al 201819 ) | 72-item measure of residents’ important preferences across 5 domains (ie, self-dominion; enlisting others in care; social contact; growth activities; leisure and diversionary activities) | “How important is it…
| Typically administered by recreational therapy, social services, or nursing; can be administered by staff with assessment experience. Consider divvying up assessment among team members based on domains (eg, social function for psychology; leisure and diversionary activities for recreational therapy; self-dominion for nursing). Interdisciplinary care team should work together to implement resident preferences into care planning and delivery. Recreational therapy can use preferences to plan individualized or group activities. Especially during COVID-19, consider the use of technology and how to meet preferences within social distancing guidelines. |
The Activity Card Sort (Baum and Edwards 2008 20 )Available for purchase at aota.org | Self or proxy report | Yes (Law et al 2005 20 ) | 55-89-item (dependent on version) measure of residents’ participation in social, instrumental, and leisure preferences that involves sorting photographs of older adults engaged in a variety of activities | Photo-based assessment | Typically administered by occupational therapy; can be administered by staff with assessment experience. Residents could be asked to sort pictures of activities into 2 categories: (1) those currently doing and (2) those stopped since COVID. They can also be asked to identify their preferred activities to aid in care planning. |
Care Preference Assessment of Satisfaction tool (ComPASS; Heid et al 2019 22 )Available for free at: compass.linkedsenior.com | Self-report | Yes (Bangerter et al 2017 23 ) | Measure that accompanies the PAT and/or PELI-NH, which tracks residents’ satisfaction with care related to their important preferences | “How satisfied are you with this preference being met in the past week?” | Typically administered by recreational therapy, social services, or nursing; can be administered by staff with assessment experience. ComPASS is especially useful to understand how residents feel about the individualization of their care during COVID and beyond. Interdisciplinary care team should work with resident to adjust care delivery to meet their preferences, as needed. |
Outcome measures | |||||
World Health Organization measures
| Self-report | Measures have been validated for use with a variety of specific populations of older adults (eg, specific conditions/cultures), but not nursing homes | Variety of measures that include domains/questions on a person’s social participation and relationships | Items vary by measure:
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use these assessments to understand how a resident perceives her or his level of function (WHODAS) and quality of life (WHOQOL) both of which can be discussed with the resident to plan care and relevant social activities. |
Patient-Reported Outcomes Measurement Information System (PROMIS) measures
| Self-report | Some measures have been validated for use with older adults, but not nursing homes | Variety of measures focused on a person’s social functioning and social health | Items vary by measure:
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use PROMIS assessments to understand residents’ perspectives on their social health. These measures could easily be used for longitudinal assessment because of their short and straightforward nature. Results should be considered in planning social activities and, also, in considering how staff can support residents. |
UCLA Loneliness Scale (Russell 1996 25 )See citation for tool | Self-report | Validated for use in older adults, not nursing homes | 20-item (dependent on version) measure of subjective feelings of loneliness and social isolation |
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use this tool to understand how lonely or isolated a resident may feel and identify areas to support their participation in social activities and social interactions. |
Three-Item Loneliness Scale (Hughes et al 2004 26 )Available for free at: campaigntoendloneliness.org | Self-report | Validated for use in older adults, not nursing homes | 3-item measure of subjective feelings of loneliness and social isolation |
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use this tool, especially when short on time, to screen for social isolation and loneliness. Then, staff can follow up with a more comprehensive assessment to identify areas to support residents’ participation in social interactions and events and facilitate social connection with others. |
Lubben Social Network Scale (Lubben and Gironda 2004 27 )See citation for tool | Self-report | Yes (Munn et al 2018 28 ) | 6-18-item (dependent on version) measure of a person’s size and type of social network |
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use this tool to identify how residents perceive their social connections and relationships. Staff can use responses to identify areas residents might need support in fostering connection and relationships with others. |
The Interpersonal Needs Questionnaire (INQ; Van Orden et al 2012 29 ; Parkhurst et al 201630 )Available for free at https://psy.fsu.edu/∼joinerlab/resources.html | Self-report | Validated for use in older adults, not nursing homes | 10-25-item (dependent on version) measure of social functioning constructs (eg, belongingness and burdensomeness); shortened response version available that is recommended for use with older adults |
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use this tool to evaluate residents’ self-perceived social deficits and use these as areas for goal-setting and planning care. However, this tool can also be used to assess residents’ risk for suicide and, therefore, is an important multifaceted social functioning assessment for staff to consider using. |
Questionnaire for Assessing the Impact of the COVID -19 Pandemic on Older Adults (Cawthon et al 2020 31 )See citation for tool | Self-report | No | 17-item measure of social functioning in light of the COVID-19 pandemic; includes the 3-item loneliness scale |
| Currently used in research; can be administered by staff with experience in assessment and interpretation. During COVID-19, this tool can be used as a baseline to understand how the pandemic has impacted residents and their typical social roles and interactions. Some questions/wording of questions will need to be adapted for the nursing home population. |
Quality of Life in Alzheimer’s Disease (QOL-AD; Logsdon et al 2002 32 )Available for purchase at apta.org | Self or proxy report specific to older adults with Alzheimer’s disease and other dementias | Yes (Edelman et al 2005 33 ) | 13-15-item (dependent on version) measure of physical health, mood, relationships, activities, and ability to complete tasks |
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use this tool to assess a person’s quality of life when living with Alzheimer’s disease. Responses from resident or proxy will help aid in care planning that aligns with a resident’s cognitive ability and functional status, specifically related to social activities and social interactions. |
The Social Functioning in Dementia Scale (SF-DEM; Sommerlad et al 2017 34 )See citation for tool | Self- or proxy report specific to older adults with Alzheimer’s disease and other dementias | Validated for use in older adults, not nursing homes | 20-item measure of engagement in social activities and relationships | “Thinking about the past month, how often have you…
| Typically administered by social services, nursing, or mental health; can be administered by staff with experience in assessment and interpretation. Interdisciplinary staff can use this tool to understand the level of social functioning for a resident who lives with dementia—especially what types of social activities they might prefer and how well they or their proxy feel the resident connects with others. |
Care Planning Measures
Self-, Staff-, or Proxy-Reported Care Planning Measures
Minimum Data Set—Preference Assessment Tool (Section F)
Self- or Proxy-Reported Measures
Preference for Everyday Living Inventory
Activity Card Sort
- McDermott A.
Self-Reported Measures
Care Preference Assessment of Satisfaction tool
Social Functioning Outcome Measures
Self-Reported Measures
Patient-Reported Outcomes Measurement Information System
World Health Organization tools
UCLA Loneliness Scale
Three-Item Loneliness Scale
Lubben Social Network Scale
Interpersonal Needs Questionnaire
Questionnaire for Assessing the Impact of the COVID-19 Pandemic on Older Adults
Self- or Proxy-Reported Measures for Residents with Cognitive Impairment
Quality of Life in Alzheimer’s Disease
Social Functioning in Dementia Scale
Implications for Practice
Conclusions and Implications
References
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Article info
Publication history
Footnotes
This work was supported with resources and use of facilities at the Center of Innovation in Long-Term Services and Supports (5I50HX001245-02) at the Providence VA Medical Center and Department of Veterans Affairs, Veterans Health Administration, Office of Research and Development, Rehabilitation Research and Development (IK2RX001241 to W.L.M.). This work was partially supported by the VA Office of Academic Affiliation Advanced Fellowship in Health Services Research (C.M.; Center of Innovation in Long-Term Services and Supports, Providence VA Medical Center) and the VA Advanced Fellowship Program in Mental Illness Research and Treatment (E.B.; VISN 2 Center of Excellence for Suicide Prevention, Canandaigua VA Medical Center). E.B., S.M.G., C.M., W.L.M., and K.S. are employees of the US Department of Veterans Affairs. The contents do not represent the views of the US Department of Veterans Affairs or the United States Government.
The authors declare no conflicts of interest.