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Editorial| Volume 22, ISSUE 10, P2036-2038, October 2021

Aligning Dementia Care Science With the Urgent Need for Dissemination and Implementation

      With more than 6 million individuals living with dementia in the United States, 11 million family caregivers, and a majority of persons with dementia ultimately residing in an assisted living community or nursing home,
      The Alzheimer's Association
      2021 Alzheimer's disease facts and figures.
      providing quality dementia care across disease stages and settings is a public health imperative. Family caregivers are called on to provide extensive assistance to relatives with dementia, long-term care staff typically lack sufficient knowledge to most effectively attend to residents’ cognitive and psychosocial challenges, and optimal models of dementia care often involve providers and services that are not effectively incorporated into the health care delivery system.
      • Coe N.B.
      • Boyd C.M.
      • Chodosh J.
      Chronic care, dementia care management, and financial considerations.
      Thus, there is an immediate need to dramatically change how we care for all people living with dementia and support their caregivers. But how?
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      References

        • The Alzheimer's Association
        2021 Alzheimer's disease facts and figures.
        Alzheimers Dement. 2021; 17: 327-406
        • Coe N.B.
        • Boyd C.M.
        • Chodosh J.
        Chronic care, dementia care management, and financial considerations.
        J Am Med Dir Assoc. 2021; 22: 1371-1376
        • Hodes R.
        Alzheimer's disease and related dementias research update: Advisory Council on Alzheimer's Research, Care, and Services Meeting. National Institute on Aging.
        (Available at:)
        • Onken L.S.
        • Carroll K.M.
        • Shoham V.
        • et al.
        Reenvisioning clinical science: Unifying the discipline to improve the public health.
        Clin Psychol Sci. 2014; 2: 22-34
        • Gitlin L.N.
        • Maslow K.
        Research summit on dementia care: Overview and recommendations. Advisory Council on Alzheimer's Research, Care, and Services.
        (Available at:)
        • National Institute on Aging
        National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers: Summit Virtual Meeting Series—Summary Report. Bethesda, MD: National Institute on Aging/National Institutes of Health.
        (Available at:)
        • National Academies of Sciences, Engineering, and Medicine
        Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences.
        The National Academies Press, Washington, DC2021
        • Butler M.
        • Gaugler J.E.
        • Talley K.M.C.
        • et al.
        Care Interventions for People Living With Dementia and Their Caregivers.
        Agency for Healthcare Research and Quality, Rockville, MD2020
        • Gaugler J.E.
        • Jutkowitz E.
        • Shippee T.P.
        • Brasure M.
        Consistency of dementia caregiver intervention classification: An evidence-based synthesis.
        Int Psychogeriatr. 2017; 29: 19-30
        • Hodgson N.
        • Gitlin L.N.
        Implementing and sustaining family care programs in real world settings: barriers and facilitators.
        in: Gaugler J.E. Bridging the Family Care Gap. Academic Press, Washington, DC2021: 179-220
        • Green L.W.
        • Ottoson J.M.
        • Garcia C.
        • Hiatt R.A.
        Diffusion theory and knowledge dissemination, utilization, and integration in public health.
        Annu Rev Public Health. 2009; 30: 151-174
        • Gitlin L.N.
        • Baier R.R.
        • Jutkowitz E.
        • et al.
        Dissemination and implementation of evidence-based dementia care using embedded pragmatic trials.
        J Am Geriatr Soc. 2020; 68: S28-S36
        • Gitlin L.N.
        • Hodgson N.
        Caregivers as therapeutic agents in dementia care: The evidence-base for interventions supporting their role.
        in: Gaugler J.E. Kane R.L. Family Caregiving in the New Normal. Elsevier, Philadelphia, PA2015: 305-356
        • Gitlin L.N.
        • Marx K.
        • Stanley I.H.
        • Hodgson N.
        Translating evidence-based dementia caregiving interventions into practice: State-of-the-science and next steps.
        Gerontologist. 2015; 55: 210-226
        • Fossey J.
        • Charlesworth G.
        • Fowler J.A.
        • et al.
        Online education and cognitive behavior therapy improve dementia caregivers' mental health: A randomized trial.
        J Am Med Dir Assoc. 2021; 22: 1403-1409.e1401
        • Harrison T.C.
        • Blozis S.A.
        • Schmidt B.
        • et al.
        Music compared with auditory books: A randomized controlled study among long-term care residents with Alzheimer's disease or related dementia.
        J Am Med Dir Assoc. 2021; 22: 1415-1420
        • Galik E.M.
        • Resnick B.
        • Holmes S.D.
        • et al.
        A cluster randomized controlled trial testing the impact of function and behavior focused care for nursing home residents with dementia.
        J Am Med Dir Assoc. 2021; 22: 1421-1428.e1424
        • Lee Y.F.
        • Hsu T.W.
        • Liang C.S.
        • et al.
        The efficacy and safety of tube feeding in advanced dementia patients: A systemic review and meta-analysis study.
        J Am Med Dir Assoc. 2021; 22: 357-363
        • Gualberto Cintra M.T.
        • de Rezende N.A.
        • da Gama Torres H.O.
        Questions about the results described in the article "The efficacy and safety of tube feeding in advanced dementia patients: A systemic review and meta-analysis study.".
        J Am Med Dir Assoc. 2021; 22: 1561
        • Liang C.S.
        • Chu C.S.
        Response letter regarding "questions about the results described in the article: 'the efficacy and safety of tube feeding in advanced dementia patients: A systemic review and meta-analysis study.'".
        J Am Med Dir Assoc. 2021; 22: 1561-1562
        • Zimmerman S.
        • Sloane P.D.
        Making pragmatic trials pragmatic in post-acute and long-term care settings.
        J Am Med Dir Assoc. 2019; 20: 107-109
        • Proctor E.
        Implementation outcomes: Their role in treatment success. NIA IMPACT Collaboratory Grand Rounds, 2020.
        (Available at:)
        • Wiltsey Stirman S.
        • Baumann A.A.
        • Miller C.J.
        The FRAME: An expanded framework for reporting adaptations and modifications to evidence-based interventions.
        Implement Sci. 2019; 14: 58
        • Baumann A.
        • Cabassa L.J.
        • Stirman S.W.
        Adaptation in dissemination and implementation science.
        in: Brownson R.C. Colditz G.A. Proctor E.K. Dissemination and Implementation Research in Health: Translating Science to Practice. Oxford University Press, Oxford2017: 286-300
        • National Academies of Sciences, Engineering, and Medicine
        Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers: A Way Forward.
        The National Academies Press, Washington, DC2021
        • Minkler M.
        • Salvatore A.L.
        Participatory approaches for study design and analysis in dissemination and implementation research.
        in: Brownson R.C. Colditz G.A. Proctor E.K. Dissemination and Implementation Research in Health: Translating Science to Practice. Oxford University Press, Oxford2017: 175-191
        • Collins L.M.
        Optimization of Behavioral, Biobehavioral, and Biomedical Interventions: The Multiphase Optimization Strategy (MOST).
        Springer, New York2018
        • Curran G.M.
        • Bauer M.
        • Mittman B.
        • et al.
        Effectiveness-implementation hybrid designs: Combining elements of clinical effectiveness and implementation research to enhance public health impact.
        Med Care. 2012; 50: 217-226
      1. Gitlin L.N. Czaja S.J. Behavioral Intervention Research: Designing, Evaluating, and Implementing. Springer, New York2016