Abstract
Objectives
The purpose of the study was to describe unique care needs of people with dementia
(PWD) and their caregivers during transitions from skilled nursing facilities (SNF)
to home.
Design
A qualitative study using focus groups, semistructured interviews, and descriptive
qualitative analysis.
Setting and Participants
The study was set in one state, in 4 SNFs where staff had experience using a standardized
transitional care protocol. The sample included 22 SNF staff, 4 home health nurses,
10 older adults with dementia, and their 10 family caregivers of whom 39 participated
in focus groups and/or interviews.
Methods
Data collection included 4 focus groups with SNF staff and semistructured interviews
with home health nurses, SNF staff, PWD, and their family caregivers. Standardized
focus group and interview guides were used to elicit participant perceptions of transitional
care. We used the framework analytic approach to qualitative analysis. A steering
committee participated in interpretation of findings.
Results
Participants described 4 unique care needs: (1) PWD and caregivers may not be ready
to fully engage in dementia care planning while in the SNF, (2) caregivers are not
prepared to manage dementia symptoms at home, (3) SNF staff have difficulty connecting
PWD and caregivers to community supports, and (4) caregivers receive little support
to address their own needs.
Conclusions and Implications
Based on findings, recommendations are offered for adapting transitional care to address
the needs of PWD and their caregivers. Further research is needed (1) to confirm these
findings in larger, more diverse samples and (2) to adapt and test interventions to
support successful community discharge of PWD and their caregivers.
Keywords
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Article info
Publication history
Published online: August 01, 2022
Footnotes
This work was funded by the National Institutes of Health, National Institute of Nursing Research (3R01NR017636-03S1).
Identification
Copyright
© 2022 AMDA - The Society for Post-Acute and Long-Term Care Medicine.
ScienceDirect
Access this article on ScienceDirectRelated Podcast
September 28, 2022
September 2022: Person-Centered Care, Trauma Informed Care, New Onset Seizures, and Transitions to Home Care
Host: Karl Steinberg MD, HMDC, CMD; Guests: Philip Sloane MD, MPH; Mallory Brown, MD
Topics: Person-Centered Care, Trauma Informed Care, New Onset Seizures, and Transitions to Home Care
https://mcdn.podbean.com/mf/download/4mjx78/JOTG-2022-09-28_mixdown.mp3
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