Abstract
Objectives
To understand dementia care providers’ perspectives on high-quality care for persons
living with dementia (PLWD) in long-term care (LTC).
Design
A qualitative study using a directed content analysis approach.
Setting and Participants
Nine national LTC dementia care providers.
Methods
We facilitated 5 listening sessions centered around dementia care philosophies, models,
and practices. Two researchers first mapped qualitative data to the Holistic Approach
to Transformational Change (HATCh) model for dementia care using a directed content
analysis approach. They then identified themes and subthemes emerging from the data
using a conventional analysis approach. They coded data iteratively and solicited
input from 3 additional researchers to reach consensus where needed. Member checks
were performed to ensure the trustworthiness of the data during 2 follow-up listening
sessions.
Results
The 9 participants described the importance of understanding the experiences of PLWDs
in order to provide high-quality dementia care and to deliver such care with the residents
and their preferences as the focus. They emphasized experiential education as essential
for families and all staff, regardless of role. They noted the need to balance safety
with resident choice, as well as the corresponding need for facility leadership and
regulators to support such choices. The listening sessions revealed areas to foster
person-centered care for PLWD, but also highlighted barriers to implementing this
philosophy in LTC settings.
Conclusions and Implications
Emergent themes included care practices that center on resident preferences and are
supported by staff with the experiential education and communication skills necessary
to relate to and support PLWD. These findings provide contextual information for researchers
seeking to identify and test interventions that reflect LTC providers’ priorities
for PLWD and emphasize the need to align research priorities with provider priorities.
Keywords
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Article info
Publication history
Published online: September 01, 2022
Footnotes
This work was supported by the National Institute on Aging (NIA) of the National Institutes of Health under Award Number U54AG063546, which funds the NIA Imbedded Pragmatic Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias Clinical Trials Collaboratory (NIA IMPACT Collaboratory). J.L.T. is also supported by a Harold Amos career development award funded by the Robert Wood Johnson Foundation (77872) and by an award from the NIA (K76 AG074922). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health or the Robert Wood Johnson Foundation.
The authors declare no conflicts of interest.
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© 2022 AMDA - The Society for Post-Acute and Long-Term Care Medicine.
